(2/17/2013)  — In many ways, 21-month-old Jake Schron is just like kids his age. He loves apple juice, Mickey Mouse, and his “mama.”

But Jakey, as his family affectionately calls him, also suffers from end-stage cardiomyopathy. His heart is enlarged and does not pump blood efficiently. 

“He has trouble with his breathing, he gets fatigued very often,” said his mother Shannon Schron. “It’s just a matter of keeping him kind of stable until a heart comes and hope that he doesn’t get worse as time goes on.”

Until he receives a transplant, doctors have a placed an IV in Jake’s chest, which delivers life-saving medicine that regulates his heart.

He’s living at the Children Hospital at Montefiore Medical Center in the Bronx while he’s hooked up to the IV, and his mother stays with him around the clock.

While Jake is on a high priority list for a heart transplant, he has been at the hospital for 77 days and there is no telling when it will be his turn. Doctors have told the family that it all comes down to luck: they need to find a heart that is the right size and the the right match. READ MORE and view VIDEO


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